Thalassemia Patients Group call for the inclusion of patients in policy making at APPIS 2021, Health News, ET HealthWorld

New Delhi: Thalassemia Patients Advocacy Group (TPAG) stressed the importance of involving patients in the policy-making at the ongoing Asia Pacific Patient Innovation Summit (APPIS), a unique collaborative partnership initiated to address the evolving capability needs of patient organizations across Asia Pacific and beyond.

The 3 days virtual summit “Co-creating patient advocacy of the future”, scheduled between 2nd and 4th March 2021 has been organized to support patient organizations to be better equipped and have their voices amplified in the healthcare system.

The APPIS initiative has been brought together by five patient organizations for the betterment of people dealing with rare cancers, disabilities among others. Targeting patient communities across Asia Pacific, the Summit aims to set out a valuable blueprint for the future of patient engagement, encompassing strategic aspects of patient organization capabilities, such as funding, stakeholder partnership, and clinical trials engagement.

“We should replicate and institutionalize such collaborations for effective policy formulation and implementation in the healthcare sector”, said Anubha Taneja Mukherjee, Member Secretary, Thalassemia Patients Advocacy Group.

“When it comes to policymaking for patients, I strongly feel that decision-makers may not be experts in every subject or issue and it would therefore be pertinent to include a patient

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